A response to the review of Facing Multiple Sclerosis: Our Longest Journey
by the authors, Dorothy Shatzky, Joel Shatzky
May
15, 2002
Dear
Ms. Mazor:
We
were delighted and surprised when we heard that you had reviewed our
book, "Facing Multiple Sclerosis: Our Longest Journey." We want you
to know that we were really moved by your perceptive and sympathetic
reading of our story. You might be interested to know that since we
wrote the book, we have gone together to Ireland for two weeks--with
a nurse, of course--and travel down to NYC to visit our children as
often as we can.
We're also planning to purchase a special lift that can be installed
in a car so that Dorothy can sit in a car instead of in a wheelchair
or an uncomfortable seat when we travel.
We
are presently beginning an article about our experiences for
"Continuing Care" magazine that will feature the book and brief bios
of the two of us. At present, Dorothy is still living at the nursing
home and although I visit her every day, and we go out weekends, I
still feel that I should be doing more, considering her
surroundings. I am thinking of retiring in several years and then
might be better able to take more care of her myself, but much of
that depends on both of our health. Dorothy generally works four to
five days a week at a protected shop center for physically and
emotionally handicapped people. She had been working in doing
computer records for her first four years there but, to my dismay
and hers, her job was phased out and she's now doing piece work,
which, considering her physical limitations, is not really
appropriate for her, and especially since she has two masters
degrees.
But
she keeps up her spirits remarkably well considering her
circumstance. I'm hoping to persuade her to collaborate with me on a
sequel to our book that would chronicle how we both have led our
lives since she was admitted to Northwoods (the name changed from
Highgate.). I think that story will be inspiring without being
"heroic."
Thanks again for your kind words. They give us courage that there
are people out there who really understand our story. We knew
nothing about your web site before we were informed of the review. I
wish it all success. Since I teach Jewish-American literature at my
college, and have edited two standard reference works on
Jewish-American writers for Greenwood Press, I appreciate what you
are doing to give more substance to our culture which is, I feel, in
jeopardy in an increasingly superficial world.
All
the best,
Dorothy and Joel Shatzky
Other books on the subject of Multiple
Sclerosis
Me and My Shadow: Learning to Live with Multiple Sclerosis,
Carole MacKie,Sue Brattle
Women Living Multiple Sclerosis, Judith Lynn Lynn Nichols
Multiple Sclerosis: The Questions You Have, the Answers You Need,
Rosalind C. Kalb,Rosalind C. Kallb
Waist-High in the World: A Life among the Nondisabled, Nancy
Mairs
Have you read "Facing Multiple Sclerosis: Our Longest
Journey" and would like to comment?
Send Your thoughts to: ms@mazornet.com.
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